Archive for January, 2011

It’s an uphill battle. Not long after my last post my med’s went missing again. Son’s doctor isn’t helping by prescribing small amounts of Oxy’s for Kidney stone pain. The 1st scrip was 30 5m pills and son used them in 2 days. Days later the doc gave him 40 more of the same strength which were also gone in 2 days. When he is out of drugs he also gets crazy irrational and won’t take his mental health med’s so we all suffer his fury.

As of this morning I am stumped what to do but secretly I am glad he has nothing left to abuse his body with. Today marks day 3 of not having to run to the local emergency room for either his swollen liver or more medication. The drug addict son has been screaming he wants to go back where he came from which of course was a horrible place yet easy access to drugs. His liver levels are still elevated but better the doc told us. His next visit to the doc will not be until February, not knowing the area or anyone down here I am sure he will do and say anything to get BACK to where he came which is out of state, but I can be just as nasty ass as he can in return and once again he is now taking a med to suffer less in cravings.

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We were told by son’s doctor that my son’s prognosis if his medical condition doesn’t turn around is 2 maybe 3 years because he also now has secondary illnesses. Virology Treatment could possibly cap off or best case scenario put the Hep C virus into nonactive but he will always carry it. This would be the best case scenario. Son is refusing treatment he says because he doesn’t want to be ill anymore from medication ontop of already being sick daily, so for the moment I am concentrating on keeping him comfortable and rested. The doctor said no physical activity. Staying sane is optional for me as I continue searching for more info and avenues of help because he has NO medical insurance so nobody will treat him anyway. Once again I am applying him for Medicaid. A new development making things difficult is my other half was laid off today after 3 years with his company in management. Losing our medical insurance is now a hardship on my son as I am only able to care for him by taking medication to make me functional, I have R. A.

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Yesterday was our 2nd journey out of state to son’s doctor in the city he moved from. The results are not good, his liver function tests came back showing more depressed, his urine examination showed signs of leucine and tyrosine crystals yet the hospital would not admit him though he could fall into coma at any given moment. THIS is the American dysfunctional healthcare system. I fought back tears and remained calm while calling my local hospital to see if he could be admitted with us bringing his medical records. My hope was short lived.

Given the fact son only has state minor medical help from his home state and we are waiting for approval of him applying here, it’s the only way he can currently get treatment. Yesterday was his 1st day of being sober, aka no needle. Happily so we were able to wean him down to a tiny amount of Oxy’ per day in the last few weeks, his last injection was 15mg two days ago and yesterday morning was an oral 10mg. This morning he will take his last dose of a 10mg Oxy.’ What makes the difference in son’s being weaned thus far off I.V. Oxy’ usage is his determination to not use needles anymore. Physical-wise yes it’s not been easy by far and the last week I have spent many a day holding his head while he vomits and shakes uncontrollably but luckily these episodes were short lived and not daily.

Some days he just feels like hell and I sit with him while he cries. Yesterday was a better day of sorts. The difficult part is with son’s liver failing and the Severe Hepatitis taking it’s toll son is in much pain. His current doctors releases are on the way here which we will sign and fax back so the pain clinic in my state along with a new Hep C and liver doctor can start treatment soon we hope. On the home front all I can do is try to keep him rested and fed. Yesterday he had only managed to put on 2 pounds since Thanksgiving and his liver levels are slightly better but still within the danger zone of Acute Liver Failure.

Adding insult to injury, my husband was laid off last week suddenly after 3 years of working at his company without warning.

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Son is trying very hard to help be weaned off the Oxy’s. He has been sick and has headaches from this uncomfortable process but he is now down to 20mg in morning and 10mg evening which is much better than where he was Thanksgiving. Wednesday we make a trip back to the city 2 hours away to get his medical records to give the pain clinic here that he may begin going to if they will have him. Next he needs to be hooked up to a new Hep C doctor. It’s painful to see him suffer but here he is safe.

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